Igor JUST has a funny shaped head!! Thank God.

Yeah, I know not the most flattering title to put on a blog post, but it's the best answer and quickest thing to read.

The craniofacial doctor called just about 20 minutes ago and confirmed that Igor's CT scan results were normal, he just has an unusual shaped head "like mine" he said, referring to himself. I didn't notice he had an odd head, but I guess if your a craniofacial doc you know if your head is "normal" or not. The eye doctor also pronounced that Igor does NOT have the eye bulging thing either so we have pretty much ruled out any craniostynosis diagnosis. Woo, I don't have to tell you what a relief it is to get that news.

The ruling out of the craniostynosis also puts the genetic doc's best guess at a syndrome at odds as well since that is a major marker of the his preferred guess. We still haven't done the genetic testing yet. It was not approved by our insurance as they deemed it "experimental" I contacted the genetic counselor lady and she had the doc call the insurance company who then agreed to do some of the test (probably the cheaper part) I just got that news yesterday afternoon. However with the skull issues not being a factor I don't know if the genetic doc will want to run testing in the same strain. We'll see, I have craniofacial and opthamology sending their reports on to genetics. I'm certainly not going to drive up to Milwaukee for a blood draw right away when it appears things may have changed.

Makes my mind SO much lighter. I feel like a HUGE weight has been lifted and the summer no longer has this horrible dangling nightmare hanging over it. I'm prepared for a genetic diagnosis, just not a major skull remodel surgery.

Speaking of remodel.... the camper is making headway. We have now finally sealed the leaks (we think) put the floor down and have installed a bulkhead wall that divides out some pass through storage. We cut the vinyl floor last night but could not put it in due to the fact we had to put some patching compound on a transition area to level it out and that had to dry. We also found some mildew growing under the vinyl in another area (wasn't wet, wasn't soft, old leak we are guessing that had been fixed) so that got scrubbed with some bleach water and needed to dry out. We are down to putting the furniture stuff back in and system checking everything. Just in time for Hubby to leave on his long training trip. Guess I'll take it on it's maiden camping voyage alone - that should be interesting. Here's hoping the van can tow it!

Well I suppose that's it for now. I just wanted to give an update and thank you for the prayers.