Don't Google that medical jargon!!

The feeding team appointment went very well today - after we got there that is. To start off we were running late, we get to the city and Hubby is driving and I'm navigating since I know the way there, however the exit snuck up on me and we were in the far left lane of a 4 lane interstate so we missed the exit. We take the next exit planning to make a u-turn and jump back on the interstate, as we sit at a red light Igor wakes up, gives a wimpy little whine and then projectile vomits from the middle row of the van all the way to the dashboard. I kid you not! Puke went over Hubby's shoulder and onto the dash. After I recovered from initial revulsion ( I'm really bad at puke) I hop in the back and pull Igor out of his seat and lay him down in the back of the van all the while hubby is looking for an on ramp - well guess what there was no on ramp back to where we had just come from! He did however see signs that would lead him to the interstate and started following those. Meanwhile in the back of the van I'm stripping puke clothes off of Igor and digging through the emergency diaper bag that was in the van cussing WI for freezing all the wipes. Luckily I had a change of clothes in the bag, but I will admit they were ridiculous and about 3 sizes too small for Igor but at least they were clean. Eventually we intersect the road that we had wanted to take the exit for and are soon at the clinic. Couple the fact we were running a little late and scenic route it was amazing that we pulled up at the building with about 5 min to spare. Luckily there is valet parking there ( I know, kinda strange but wonderful in this instance) so we left the puke covered van with the thrilled attendant and ran for the appointment and made the door with no time to spare!

At the appointment we met with a wide range of diciplines from pych, GI, speech and nutrition. We played 1001 questions and they watched Igor eat through a two way mirror. The news we got was mixed. There is no quick fix to the issues, it will take therapy and persaverance but on the upside they thought that he will make progress and this probably will not be a prolonged battle of years and years. Well the reason for the title? The doctors seem to think he has some of the charachteristics of syndrome. I'll post what it is if we get actually diagnosis as we are running a gene test now to see. The syndrome has a wide range of things associated with it and can go from mild to severe. The problem is when you google something like that you get a lot of scary stuff. My moral for the day is don't google anything medical until you have a confirmed diagnosis in your hand. Stay away from the computer if you must, that way if the test comes back negative you say "Thank Goodness" and go on none the wiser and saved yourself much stress.

Needless to say we had to ride home 45 min in a puke scented van- I don't think that's an air fragrance you can find on one of those little pine trees.

I want to remark on how great the experience with the feeding team was. It was wonderful to have all the people involved in something that would have taken weeks of appointments and answering the same questions repeatedly to get to same conclusions. I reccomend that if you have an issue that several specialties should be consulted with to see if there is some team approach that can work like this.

Well nothing terribly new, we'll start feeding therapy again with the therapis there ( she's actually a PHD) so I hope she'll have some insights into this and how to work with Igor.

It's a relief to see some progress in this area.